The LS is n interntionl, voluntry, non-profit orgniztion mde up of prents, friends, professionls, nd others who re interested in Lowe syndrome (LS), rre genetic condition tht ffects boys. We’ve been working since 1983 to develop community of support nd encourgement for fmilies ffected by LS. Our work is guided by our purposes: to foster communiction mong fmilies to promote better understnding of the syndrome to provide medicl nd eductionl informtion to encourge nd support reserch.
