myotrophic lterl sclerosis, or motor neurone disese, is muscle wsting condition which ffects individuls nd those who cre for them cross the world. To help people with the disese, groups of people hve come together to form ssocitions.The llince functions primrily s forum for the exchnge of informtion on ll spects of the disese, reserch nd mngement of cre s well s the provision of support through networking nd shring the development of ides on good prctice. Its developing role is the dvncement of the ptients’ views in discussions ffecting the well-being of people with LS/MND. s prt of this ctivity, llince members host the nnul Interntionl Symposium on LS/MND, which is the preeminent event bringing together leding reserchers nd helth cre professionls worldwide to present nd debte key innovtions in their fields.

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