We re the only world-wide volunteer orgniztion dedicted to sving lives through eduction, dvnces in tretment nd pursuit of cure for Brth syndrome (BTHS). We strted in 2000, fter the first interntionl conference held in Bltimore, MD (US) where fmilies from round the world met to discuss BTHS. s result, we mde unnimous decision to work together to find cure for this multi-system disorder. Our Foundtion strives to ccelerte progress through collbortion between fmilies nd scientists.
