The United Leukodystrophy Foundtion (ULF), incorported in 1982, is nonprofit, voluntry helth orgniztion dedicted to providing ptients nd their fmilies with informtion bout their disese nd ssistnce in identifying sources of medicl cre, socil services, nd genetic counseling; estblishing communiction network mong fmilies; incresing public wreness nd cting s n informtion source for helth cre providers; nd promoting nd supporting reserch into cuses, tretments, nd prevention of the leukodystrophies. Leukodystrophies re group of genetic nervous system disorders ffecting the myelin sheth, which insultes the xon through which nerve impulses re conducted. The ULF is supported solely by dontions.
