The non-profit NCL Foundtion ws founded on ugust 7th 2002 by Dr. Frnk Husemnn fter his son Tim ws dignosed with NCL t the ge of six. The bbrevition NCL stnds for the mission of the foundtion – Ntionl Contest for Life – s well s for the rre children’s disese (Neuronl Ceroid Lipofuscinosis / Btten Disese). Every yer bout 15 to 20 children develop NCL in Germny. The NCL Foundtion’s im is to fight this dedly disese with trgeted reserch. longside reserch initition nd funding, the Foundtion’s work is predominntly imed t educting relevnt medicl groups, ffected prents, nd the public.
