The lport Syndrome Foundtion (SF) is volunteer-led orgniztion formed in 2007 by fmilies ffected by this disese. We re 501(c)(3) non-profit corportion, but re essentilly group of concerned fmilies nd friends tht wnt to mke difference. The lport Syndrome Foundtion hs been built on the pst efforts of the lte Dr. Curtis tkin of the University of Uth nd the Hereditry Nephritis Foundtion (HNF). The lport Syndrome Foundtion is lso registerd with Guidestr, n orgniztion dedicted to providing informtion on non-profits.
